Thursday, May 27, 2010

Now the Veins are Flowing Like the Nile

Just a quick update. I had my second doppler ultrasound done this evening and my veins are completely normal! I made the doctor scan his own neck just so I could compare mine with his! My veinous valves were both not working before the procedure but now they were flapping away and very quickly I might add.

I met some more people today at the clinic who were having the procedure done on Saturday. One other Canadian who was diagnosed with CCSVI right before my eyes (the doctor also called me in so I could compare my normal scan to a scan that was abnormal). There were a few Saudi people also coming in for a doppler scan and to be diagnosed with CCSVI. They were all very pleasant, hopeful, and optimistic. It was such a pleasure to speak with these people and to learn about their culture and their medical system. What an amazing experience this has been. We also shared a cab this evening with the new Canadian who recently came here for the procedure on Saturday and we had such a blast with the cab driver. He cranked up some English tunes and the recently diagnosed CCSVI Canadian's sister started dancing in the car (and she is also blonde)! The driver started to hit on her and it was so beyond funny as she tried to explain to him that her husband was arriving the next day. These are moments I will never forget!

As for improvements with symptoms: My eyes are a different color...really!; I don't feel as fatigued, my neck doesn't hurt as much, and my feet are still pink! The other Canadian has reported an increased sense of balance and improved energy. The person from Greece also has reported an increase in energy. The procedure was successful for all three of us who were treated yesterday in the sense that the veins remain open and functional.

I did ask the doctor if he had noticed any correlation between very twisted veins and the symptoms associated with MS and he said there is no correlation in any regard. He gave numerous examples of others such as myself with beginning stages of MS and extremely twisted veins. The doctors here are so beyond patient, understanding, kind, and attentive. I sincerely thank them for all of their time and generosity shown towards me and my husband. Thank-you!

I look forward to my continued improvements and I so long to be home safe with my sweet baby girl.

12 comments:

  1. Are you saying that CCSVI has nothing to do with MS? I'm confused by the comments you have made saying that the doctor says that blocked veins have nothing to do with MS symptoms. ???

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  2. I am so interested in this all! Much love to you and Roman. xoxo

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  3. Yes, please clarify the correlation, I am confused also.

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  4. To answer your question...The more blocked the veins are in an individual has NO correlation to the severity of MS symptoms. Everyone (it seems) with MS has some form of blocked veins, but there is no correlation between severely blocked veins and how bad your MS is. For example, my MS is not that bad. I can walk, talk, etc. but my veins were the worst that the doctor has seen in his 30 years of practice.

    Thank-you to everyone for all of your very positive comments, support, and love. Cheers!

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  5. Praying that you have a safe trip home, and praying that the blood keeps flowing on!

    Sam

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  6. Those are awesome results, and I'm glad you're feeling better since the surgery.

    See you soon!

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  7. Perhaps it is not how much the blockage is that affects the symptoms, but rather how long they have been like that and leaving iron deposits in the brain. Perhaps those newly diagnosed are just beginning to have iron deposits take place and so show fewer symptoms; those who have had MS longer may go on to have worse symptoms as over a longer period the iron deposits have worsened.??

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  8. After 6 months of offering stem cell therapy in combination with the venous angioplasty liberation procedure, patients of CCSVI Clinic have reported excellent health outcomes. Ms. Kasma Gianopoulos of Athens Greece, who was diagnosed with the Relapsing/Remitting form of MS in 1997 called the combination of treatments a “cure”. “I feel I am completely cured” says Ms. Gianopoulos, “my symptoms have disappeared and I have a recovery of many functions, notably my balance and my muscle strength is all coming (back). Even after six months, I feel like there are good changes happening almost every day. Before, my biggest fear was that the changes wouldn’t (hold). I don’t even worry about having a relapse anymore. I’m looking forward to a normal life with my family. I think I would call that a miracle.”

    Other recent MS patients who have had Autologous Stem Cell Transplantation (ASCT), or stem cell therapy have posted videos and comments on YouTube. www.youtube.com/watch?v=jFQr2eqm3Cg.

    Dr. Avneesh Gupte, the Neurosurgeon at Noble Hospital performing the procedure has been encouraged by results in Cerebral Palsy patients as well. “We are fortunate to be able to offer the treatment because not every hospital is able to perform these types of transplants. You must have the specialized medical equipment and specially trained doctors and nurses”. With regard to MS patients, “We are cautious, but nevertheless excited by what patients are telling us. Suffice to say that the few patients who have had the therapy through us are noticing recovery of neuro deficits beyond what the venous angioplasty only should account for”.

    Dr. Unmesh of Noble continues: “These are early days and certainly all evidence that the combination of liberation and stem cell therapies working together at this point is anecdotal. However I am not aware of other medical facilities in the world that offer the synthesis of both to MS patients on an approved basis and it is indeed a rare opportunity for MS patients to take advantage of a treatment that is quite possibly unique in the world”.

    Autologous stem cell transplantation is a procedure by which blood-forming stem cells are removed, and later injected back into the patient. All stem cells are taken from the patient themselves and cultured for later injection. In the case of a bone marrow transplant, the HSC are typically removed from the Pelvis through a large needle that can reach into the bone. The technique is referred to as a bone marrow harvest and is performed under a general anesthesia. The incidence of patients experiencing rejection is rare due to the donor and recipient being the same individual.This remains the only approved method of the SCT therapy. For more information visit http://ccsviclinic.ca/?p=838

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  9. However, most of the time, people do not notice the pain, because the veins affected by varicose veins are outside.

    veins

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  10. David Summers, a 37 year old MS patient from Murfreesboro, Tennessee was a score of 8.0 on the Expanded Disability Status Scale (EDSS) when he had the Combination Liberation Therapy and Stem Cell Transplantation at CCSVI Clinic in March of 2012. Having been diagnosed in 1996 he had been in a wheelchair for the past decade without any sensation below the waist or use of his legs.
    “It was late 2011 and I didn’t have much future to look forward to” says David. “My MS was getting more progressive and ravaging my body. I was diagnosed as an 8.0 on the EDSS scale; 1 being mild symptoms, 10 being death. There were many new lesions on my optic nerves, in my brain and on my spinal cord. My neurologist just told me: ‘be prepared to deteriorate’. I knew that he was telling me I didn’t have much time left, or at least not much with any quality.” David had previously sought out the liberation therapy in 2010 and had it done in a clinic in Duluth Georgia. “The Interventional Radiologist who did it told me that 50% of all MS patients who have the jugular vein-clearing therapy eventually restenose. I didn’t believe that would happen to me if I could get it done. But I have had MS for 16 years and apparently my veins were pretty twisted up”. Within 90 days, David’s veins had narrowed again, and worse, they were now blocked in even more places than before his procedure.
    “I was so happy after my original procedure in 2010. I immediately lost all of the typical symptoms of MS. The cog fog disappeared, my speech came back, the vision in my right eye improved, I was able to regulate my body temperature again, and some of the sensation in my hands came back. But as much as I wanted to believe I felt something, there was nothing below the waist. I kind of knew that I wouldn’t get anything back in my legs. There was just way too much nerve damage now”. But any improvements felt by David lasted for just a few months.
    After his relapse, David and his family were frustrated but undaunted. They had seen what opening the jugular veins could do to improve him. Because the veins had closed so quickly after his liberation procedure, they considered another clinic that advocated stent implants to keep the veins open, but upon doing their due diligence, they decided it was just too risky. They kept on searching the many CCSVI information sites that were cropping up on the Internet for something that offered more hope. Finding a suitable treatment, especially where there was no known cure for the disease was also a race against time. David was still suffering new attacks and was definitely deteriorating. Then David’s mother Janice began reading some patient blogs about a Clinic that was offering both the liberation therapy and adult autologous stem cell injections in a series of procedures during a hospital stay. “These patients were reporting a ‘full recovery’ of their neurodegenerative deficits” says Janice, “I hadn’t seen anything like that anywhere else”. She contacted CCSVI Clinic in late 2011 and after a succession of calls with the researchers and surgeons they decided in favor of the combination therapies.For more information please visit http://www.ccsviclinic.ca/?p=904

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  11. http://www.youtube.com/watch?v=ysFiW26MHfQ&feature=player_embedded#t=0s
    http://www.youtube.com/watch?v=BfSOmij8tfk&feature=youtu.be
    Over the past year, CCSVI Clinic and its researchers and specialists have been studying the Combination venoplasty/autologous stem cell infusion protocol developed by Regenetek Cellular Technologies with the collaboration of outside labs and bioproducts manufacturers. As laboratory techniques gain ever-increasing sophistication based on new scientific methodologies for enhancing somatic cells into preferred lineages in vitro, the therapeutic outcomes for patients with neurological disorders have also been improving. Deb O’Connell who was treated at the Clinic in mid-September, 2012 recovered so quickly from her serious long-term degenerative disease condition that she experienced a wave of improvements while still in the hospital.
    It’s a matter of medical record that Deb had been wheelchair bound for 10 years (completely non-ambulatory) with multiple co-morbidities when she entered the program on September 9; she was 9.5 on the EDSS scale as assessed by a neurologist, was down to 80 lbs in body weight, could not breathe effectively, speak, or take in food by mouth due to dysphagia. Her pain was chronic and significant. When she left the Clinic on September 24th , she walked out of the doors and into a waiting van to go to the airport. At the time of her discharge from the Clinic, she could breathe normally, effectively speak once again, eat any types of food she desired and her pain had all but disappeared. At the time of this writing she is back home in Canada and reports that she continues to recover (especially her contractured hands), shows no signs of new disease symptoms, and has gained 18 lbs since her therapies, less than 3 weeks ago. She has now begun a regular physiotherapy program and is gaining walking strength and balance. The recapitulation of the course of her disease (MS) within days, provides evidence that the in vitro requirement of cell pluripotency has correctly been identified with respect to adult cell source origin, time, and manipulation in culture. http://www.ccsviclinic.ca/?p=1084
    http://www.youtube.com/watch?v=ysFiW26MHfQ&feature=player_embedded#t=0s
    http://www.youtube.com/watch?v=BfSOmij8tfk&feature=youtu.be

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  12. Methodology, Intervention Dose and Administration Procedures
    The Combination Therapy approach was used. Combination Therapy is a novel two‐part sequenced protocol for infusing both bone marrow-derived stromal cells and cultured mesenchymal stem cells (MSCs) and was developed for the treatment of MS by CCSVI Clinic and Regenetek Research. All 16 patients demonstrated significant pathological abnormalities in their jugular or azygous veins as determined by magnetic resonance venography (MRV) at the time of their procedures. Patients who underwent vein dilatation also had their veins infused at the time of venoplasty (if and where indicated) with adult stromal cells from a bone-marrow source which were previously separated by density gradient centrifugation. In the second part of the sequenced therapy, adult autologous cells from the same source that were expanded in vitro were later infused back into the central nervous system (CNS) via lower lumbar puncture.For more information please visit http://www.ccsviclinic.ca/?p=1194 or you may call the toll free number at 888-468-1554 or info@ccsviclinic.com

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